Tuesday, May 26, 2009

"Backseat drivers don't know the feel of the wheel, but they sure know how to make a fuss" - Bob Dylan Let's Keep It Between Us

Maybe I haven't wrote in a while because there hasn't been much to write. Or perhaps it's because I have run out of things to write. Still otherwise I may have spent the last three plus weeks laid up in my bed to sick to type. Maybe, you're thinking, I've fully exhausted the therapeutic tool of blogging...

I think Mister Bobby Dylan is more accurate. 

I think I haven't written a post in a while because my dedication to write honestly and openly has met the crossroads of delicacy of the emotions of others. Let me be more clear. To write truthfully about living (and dying) with cancer is a subtle tightrope one walks in which he must balance unbridled truth against the delicate nature of the unaffected readers' psyches. In essence, in order to be effective I must be truthful and forthcoming with how I detail my personal battle, but I must also consider the idea that (hopefully) the overwhelming majority of the people reading will never understand what it truly feels like. As I scan back over that last sentence I am surprised by the tone of the sentence and its seeming superiority, as if none of you has ever endured anything as difficult as I; however, I have restrained myself from editing the sentence because there is nothing wrong with what I have typed. You will never understand even one micrometer of what it is like to live my life, but similarly I will never understand what life is like for you. Inevitably, all people are destined to be separated by the very thing that makes our lives worth living: our individuality.

Since I am an individual and there is no one in this world that is even somewhat like me, every person outside of me is incapable of fully understanding any description of my life and the things that happen inside of it. That is why metaphors, similes, personification, and symbolism are so effective in story-telling from memoirs to Hollywood films. These artistic devices rely on communal knowledge and primal instincts and feelings to establish common ground in the efforts of bringing the audience to a more comfortable and accessible environment. The truth, nonetheless, remains unchanged. I can never make you understand what it is like to receive chemotherapy treatments if you have never had it. Moreover, even someone who has had chemotherapy treatments (even the same exact type of treatments) will fall tragically short of sufficiently understanding my trials with the medicine simply because we are individuals. Sure, we may be able to establish some common area of understanding, but since we cannot get into one another's head, and since we will always maintain our own minds, we will always be inherently incapable of fully understanding another person, cancer patient or otherwise. This phenomenon has lead to cliched phraseology such as "one man's trash is another man's treasure." If one forgives social and economic differences, this phrase is true simply because people experience the world differently.

The task of explanation becomes more cumbersome when it details individuals who experience certain extremities or boundaries that lie outside of the general norm. For instance, most people can actively participate in an open discussion about college life, since most people of our generation have actually lived the college life. Though the experiences may be dramatically different, "college life" is an environment that most people would view as normal. Even those who did not directly experience college life understand the themes and experiences that it entails either through hearsay or through media portrayals (see Animal House). On the other hand, there are experiences that fall so far outside the accepted norm that their discussion is rendered much more difficult. For example, most of us will never fight in a war such as the war in Iraq. So, soldiers, Marines, Navy men, and other members of the armed services have such an extreme experience that it is increasingly difficult for those individuals to relay their experiences to those who have not, and likely will not, experience them. Thus, we see the pains to which the military goes to readjust servicemen back into society and we are seeing more and more servicemen who are ostracized from society because of their experiences and diagnosed with various mental illnesses. As a result, the average non-war-fighting individual is at a loss to understand the experiences of a servicemen and often times we look at these individuals just as they look at themselves: different than the rest of us. Within our own difficulty in trying to relate to these individuals by establishing some common ground, however, we sometimes make the individuals feel as if they cannot be as open and honest as they would like. And so, the men and women of extreme experiences are at a crossroads between truth and the comfort levels of others.

There are some things that we do not want the soldiers to tell us. We want to know how they gave the children toys and soccer balls, and we want to know how the American troops stormed a building and foiled a key component of the plans of our enemies, but we do not want the whole truth. That is, we do not want to know about when a platoon fired through the windshield of a car who failed to stop at a military junction and upon inspecting the vehicle found only two infants and a local Christian missionary who was assisting the U.S. military efforts. This is the truth, yet this is the truth we do not allow the person to feel comfortable saying. 

By no means am I trying to equate my circumstances with the bravery and courage displayed by the hundreds of thousands of men and women who protect our beliefs and our freedoms by fighting our wars. Yet I do believe that I have reached a point in these writings where I am forced to compromise the truth of what I write for fear that someone will believe that what I write shows that I have given up, or given in, or that what I type is too much honesty for my loved ones to handle. In my honest discussions with some people about my situation, I am constantly met with replies of what I must do in order to get through this difficult time. I am constantly bombarded by people who are telling me what it means that I have cancer or why I have cancer or what is the proper way for me to live my life with cancer. I am told by my loved ones that these people are only overcome by an uncomfortable feeling of not knowing what to say, but I don't understand why this gives them the right to spew verbal diarrhea at me. I am so overwhelmed by the notion that so many people care about me, and are about me enough to try and give me words of encouragement, or help me through tough times...

...but too many backseat drivers wraps the car around a tree. 

Friday, May 1, 2009

"I have always believed, and still believe, that whatever good or bad fortune may come our way we can always give it meaning and transform it into something of value." - Hermann Hesse

My most recent trip to my regular cancer doctor did not go well. If I'm being completely honest, my last trip left me with no clue what to write about, which is why it has been so long since I've posted. I've had ideas, but in selfish light of the bad news we got at the doctor's office, I was sufficiently unmotivated to create a blog post. Thinking about it now, I believe that is a very sad perspective to have, but I must admit it was my point of view. 

The doctor basically told me that it did not appear that my disease would ever be resolved. I should mention that the overwhelming insinuation was not simply that I would always have cancer, but rather that I would expire in a relatively short period of time. These words, that news, depressed me in a way that I did not anticipate even though I knew that was already the case judging by the way my body was feeling progressively worse. There are still treatment options like the chemotherapy that I am on now, and when that runs out, there are clinical trials that can be enrolled in ad nauseam (pun intended), but somehow I felt uneasy about the future.

Be not afraid and do not feel sad because of what I have written above; only through the darkness can we understand the light. I have finally remembered that I am not in uncharted territory. That is, I have been here before. Perhaps, not all the circumstances are the same, but I have endured this situation already. I have been told that I would be dead shortly. The MEDICAL FACTS have already "guaranteed" my departure. Science and reason has previously divested me of every ledge upon which I could grasp a hold. The end for me has already come many times before and yet I remain among the living. I allowed fear to take hold of my head, but that fear was never able to get to my heart since my heart has seen these darkened days previously. I have risen from the medically pronounced dead more than once before and that means that there is no reason why I cannot continue to do so moving forward. The law of averages be damned, beating the odds once does not increase the odds against you. No, the odds remain the same and those odds are as we've discussed before: 50%/50%. 

I apologize to my fiancee and to my family for having forgotten this recently. I apologize to all of you for hypocritically posting messages here of thinking and believing in certain things and then allowing myself to be overrun by ignominious thoughts. Then I think - that's why they have so many cliches about failure: if at first you don't succeed, try, try again; it's not how many times you fall, but how many times you get back up; get back on the horse; it's not how hard you can hit, but how hard you can get hit and keep getting up; etc. Even Jesus Christ walked around for three years preaching the good word of the Lord, speaking of self-sacrifice; yet, on the night before his arrest, trial, and crucifixion, while alone in the garden at Gethsemane prayed three times asking God not to make Jesus have to endure the pain, suffering, torture, and death. Though each time Jesus prayed to be relieved of his suffering, He eventually returned back to his original beliefs saying to God "nevertheless not My will, but Yours, be done" (Lk 22:42).

My purpose is not to liken myself to Jesus, but to make the point that questioning beliefs and wavering strength is not only human, it is also divine. Jesus Christ, the leader of the Christian religion displayed the desire to ease the pain of his life. The Buddhist Gautama Siddartha, or "Buddha," similarly was described as having had many failures and moments of weakness in his quest to reach Nirvana. I spoke in elevated tones of strength, motivation, an living for now and yet I stumbled in my support of those things (it is not the first time nor will it be the last, I'm sure). But I am back on the horse, I took the hit and I got back up, I took a lickin' and I'm still tickin', you pick whichever cliche works best for you and insert it in this sentence. The point is not whether or not you suffer, but as Hesse says in the quotation at the top, its about whether or not you make that suffering into something of value. Faith in one's self is invaluable so I have to thank my doctor, and not be bitter, for giving me that bad news. His words caused me to remember how to fight back against the world. 

No doubt bad news will come. No doubt this treatment regimen will continue to be one of the more brutal combinations I have experienced. No doubt my physical strength and energy will be stripped again and again. But I have been reminded once again that though this disease and the associated treatments can take away my body, they cannot take away my mind unless I allow it to be done. It is the ultimate "sticks and stones may break my bones, but words will never hurt me." I cannot be hurt by what I will not allow to hurt my will.

I must thank my fiancĂ©e Katie for re-awakening all of these things inside of me. If not for her, I may not have remembered what I promised I would never allow this disease to make out of me. I thank her for allowing me to hide my moments of weakness in her. I also need to thank my dad, mom, and brother for doing the same. "Don't worry guys, I may sound weak again moving forward, but my heart is in the game. Give me my moments to fall down and I promise that as long as I can I will ALWAYS get back up again."

"You know quite well, deep within you, that there is only a single magic, single power, a single salvation... and that is called loving. Well, then, love your suffering. Do not resist it, do not flee from it. It is your aversion that hurts, nothing else."