Friday, May 1, 2009

"I have always believed, and still believe, that whatever good or bad fortune may come our way we can always give it meaning and transform it into something of value." - Hermann Hesse

My most recent trip to my regular cancer doctor did not go well. If I'm being completely honest, my last trip left me with no clue what to write about, which is why it has been so long since I've posted. I've had ideas, but in selfish light of the bad news we got at the doctor's office, I was sufficiently unmotivated to create a blog post. Thinking about it now, I believe that is a very sad perspective to have, but I must admit it was my point of view. 

The doctor basically told me that it did not appear that my disease would ever be resolved. I should mention that the overwhelming insinuation was not simply that I would always have cancer, but rather that I would expire in a relatively short period of time. These words, that news, depressed me in a way that I did not anticipate even though I knew that was already the case judging by the way my body was feeling progressively worse. There are still treatment options like the chemotherapy that I am on now, and when that runs out, there are clinical trials that can be enrolled in ad nauseam (pun intended), but somehow I felt uneasy about the future.

Be not afraid and do not feel sad because of what I have written above; only through the darkness can we understand the light. I have finally remembered that I am not in uncharted territory. That is, I have been here before. Perhaps, not all the circumstances are the same, but I have endured this situation already. I have been told that I would be dead shortly. The MEDICAL FACTS have already "guaranteed" my departure. Science and reason has previously divested me of every ledge upon which I could grasp a hold. The end for me has already come many times before and yet I remain among the living. I allowed fear to take hold of my head, but that fear was never able to get to my heart since my heart has seen these darkened days previously. I have risen from the medically pronounced dead more than once before and that means that there is no reason why I cannot continue to do so moving forward. The law of averages be damned, beating the odds once does not increase the odds against you. No, the odds remain the same and those odds are as we've discussed before: 50%/50%. 

I apologize to my fiancee and to my family for having forgotten this recently. I apologize to all of you for hypocritically posting messages here of thinking and believing in certain things and then allowing myself to be overrun by ignominious thoughts. Then I think - that's why they have so many cliches about failure: if at first you don't succeed, try, try again; it's not how many times you fall, but how many times you get back up; get back on the horse; it's not how hard you can hit, but how hard you can get hit and keep getting up; etc. Even Jesus Christ walked around for three years preaching the good word of the Lord, speaking of self-sacrifice; yet, on the night before his arrest, trial, and crucifixion, while alone in the garden at Gethsemane prayed three times asking God not to make Jesus have to endure the pain, suffering, torture, and death. Though each time Jesus prayed to be relieved of his suffering, He eventually returned back to his original beliefs saying to God "nevertheless not My will, but Yours, be done" (Lk 22:42).

My purpose is not to liken myself to Jesus, but to make the point that questioning beliefs and wavering strength is not only human, it is also divine. Jesus Christ, the leader of the Christian religion displayed the desire to ease the pain of his life. The Buddhist Gautama Siddartha, or "Buddha," similarly was described as having had many failures and moments of weakness in his quest to reach Nirvana. I spoke in elevated tones of strength, motivation, an living for now and yet I stumbled in my support of those things (it is not the first time nor will it be the last, I'm sure). But I am back on the horse, I took the hit and I got back up, I took a lickin' and I'm still tickin', you pick whichever cliche works best for you and insert it in this sentence. The point is not whether or not you suffer, but as Hesse says in the quotation at the top, its about whether or not you make that suffering into something of value. Faith in one's self is invaluable so I have to thank my doctor, and not be bitter, for giving me that bad news. His words caused me to remember how to fight back against the world. 

No doubt bad news will come. No doubt this treatment regimen will continue to be one of the more brutal combinations I have experienced. No doubt my physical strength and energy will be stripped again and again. But I have been reminded once again that though this disease and the associated treatments can take away my body, they cannot take away my mind unless I allow it to be done. It is the ultimate "sticks and stones may break my bones, but words will never hurt me." I cannot be hurt by what I will not allow to hurt my will.

I must thank my fiancĂ©e Katie for re-awakening all of these things inside of me. If not for her, I may not have remembered what I promised I would never allow this disease to make out of me. I thank her for allowing me to hide my moments of weakness in her. I also need to thank my dad, mom, and brother for doing the same. "Don't worry guys, I may sound weak again moving forward, but my heart is in the game. Give me my moments to fall down and I promise that as long as I can I will ALWAYS get back up again."

"You know quite well, deep within you, that there is only a single magic, single power, a single salvation... and that is called loving. Well, then, love your suffering. Do not resist it, do not flee from it. It is your aversion that hurts, nothing else."

3 comments:

Anonymous said...

Anonymous said...
A small comment

- Dying is not bad thing, as such that it is a natural thing. As long as you see death as a normal welcoming; a release from the constant pains of life(with our without cancer) only then will you learn to live peacefully and silence that annoying voice within.

I understand the loneliness. I understand the voice of the irritating reminder of your present reality. Just remember, you are not alone in this despair, and like it or not...everyone has to go...back!?

Live long, and love Andrew

- A heart from a far

Jenn Jilks said...

Dear Andrew,

There is a difference between being hopeful, and having hope; feeling weak (physically,spiritually, socially or emotionally), and feeling hopeless. You can accept your situation and still have hope.

What you feel is not wrong. What you feel ...simply is. Acknowledge your feelings.

Remember, it is not your job to make others feel anything, you need not perform for them, behave a certain way, or feel certain things, but it does help you to talk about what you feel: honestly, and others to understand where you are in your journey. Give yourself permission to be yourself.

I wrote about my journey to help others. There are many lessons. Life is a journey and a classroom.

I was the family advocate (trained Hospice Volunteer) for a family with a Hospice patient for the past 2 weeks, she passed over last w/e. Reach out for such groups, if I may be so bold. It is a familiar story, I share my tales of the palliative care, since I lived through it.

This is the time to reach out, if I may be so bold. What you accept from others (time, energy, support) helps them, too.

You should expect to make certain preparations. Forewarned is forearmed. Everyone's journey is different, but there are lessons and things to make the journey easier for you, family and friends.

All my best wishes. Remember, you are a beautiful person. "God don't make no junk!" You are in my thoughts.

check out:

National Hospice Organization – www.nho.org/ - The National Hospice Palliative Care Organization is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

www.mAssKickers.org said...

hi andrew! you might wanna check out planet cancer. there are a bunch of us young people on there. all with cancer or brain tumors. check it out! http://myplanet.planetcancer.org/