Monday, January 26, 2009

What Goes Boom in the Night?

Am I fated to live Odysseus' life, to be away from home for twenty years? Ten years to be spent fighting a war that seems near impossible to win? A war against an enemy that has nearly never been defeated. And If I win this war, storming the cancerous walls of Troy, to what do I have to look forward? Another ten years at sea, trying to find my way home? Having lost myself in battle, I will awake every morning to a phantom pain, a nonexistent affliction that agonizes my psyche. I will spend every month at first, then every three months, then every six months, then every year waiting for that ache of malignancy to return.
As she sleeps, my fiancee tosses and mumbles inaudible cries that seek understanding. Finally, she asks aloud, "How can I plan for a future with you when I can't even be sure that you will be there?" How indeed. And I have no reasonable answer for her cries. What can I tell her? How do you put other people inside of your mind? What if she could know what I see just before I fall asleep.
In those moments before I fall asleep - a demi-death so to speak, a veritable recreation of the death experience itself - while others dream of being Peyton Manning, or Barack Obama, or Bill Gates, or Britney Spears, I imagine what might be if I never opened my eyes again. I meditate on the idea that sleep and death feel the same, the only difference being waking up.
My eyes grow heavy, but I fight on against the force that threatens to close my eyes. And in my illusory perceptions of conscious sleep I can visualize the organs in my body. I see black, hardened tissue spreading over the pink, fleshy cells like locusts over a lush green meadow. I see the images from health class of a smoke-damaged lung, the black tissue is the gnarled and twisted metals of a building burned down. Negative images of my body scans paint the backs of my eyelids. My body is the view from a ski resort window in the Swiss Alps, white snow as far as the eye can see. The flickering of concerned eyes from friends and family while they hear the unfortunate news. The gaping mouths of disbelief. This is not the winter, nor summer, spring nor fall of our unhapiness, these are the days of our discontent.
Have I fallen asleep? Am I still awake? Every day there is something to remind me, something that tells me that I am sick, that I am dying. My response, continues to feel the same: show me something other than black pictures with white skeletons swaying to and fro on them, I DO NOT FEEL SICK. I only feel the cold touch of death while lying on the chairs in which you tell me to lie. Only after accepting the medicine that you tell me to accept. Come see me on the other days I tell them. Come and sit on the couch with me and watch "Step Brothers." Show me I'm sick then. The mind cannot feel what the body does, and, unfortunately, the body cannot comprehend what the mind ponders. If only the body knew that it was not sick, then perhaps I might wake from this nightmare. But the body knows what the mind is unwilling to admit. He senses the infiltrator tip-toeing here and then there floating through his canals on a trip to another part of the body...
I'm jolted awake... I finally can escape the hauntings of my mind. I do NOT agree with the ideas that penetrate the soft walls of my head during the night hours, but I cannot escape them since I cannot control them. Surely, these thoughts exist in my mind somewhere; in some cavernous Mariana Trench in the North Pacific Ocean of my psyche. These are not my thoughts. These are inescapable horrors that come with the territory. It is like watching a horror film: one enjoys the feeling of being scared - or at least they are able to cope with seeing it - but one cannot escape the fearful thoughts that creep into the mind and poison the dreams of individuals.
Rest assured that thoughts alone will not make me too afraid to look under the bed, because I know that there are no monsters that dwell there. Come out from hiding and face me head on, I chide them. Like I thought, they prefer the deep ocean trenches. I think their voices are made scarier by the echoes, which deepen the groans and heighten the screams.
I am not afraid, nor should you be My Love. They are shadows and dust only. So, sleep quietly and sleep soundly.
Do not fear what cannot hurt you; and thoughts alone cannot pierce the skin...

Wednesday, January 21, 2009

Prepare for Battle Soldier

After a treatment, the countdown towards the next treatment has already begun. It's a running timer that continuously resets itself and I cannot seem to avoid it. 25 of the last 29 months my treatments have come almost as sure as the sun rises. and when the breaks are given to you, that clock merely extends itself, but still it ticks away. Time doesn't stand still for a moment, except for the moments when you feel your absolute worst, when the clock seems to sit at 1:23 p.m. for an eternity. My pursuit against my disease seems to cast me as Sisyphus, the man condemned by the Greek gods to endlessly roll a boulder to the top of a mountain, at which point the boulder would roll back down from it's own weight. Laboriously, I accept my treatment and begin my banal ascent towards recovery at the top of the mountain. My Sisyphean task near completion, I reach the top of the mountain believing that, this time, my boulder might stay. The momentary hesitation of the stone only serves to reinforce my hopes that this time it will remain; yet, the boulder plummets towards the ground as I arrive back at the hospital for the next round of treatment. The fight and struggle seems futile, as the energy appears to be exerted towards accomplishing nothing.
The muscles tighten and fire electric signals to the brain, which relays back the physical movement of the body against its boulder. The body goes low for leverage and the foot digs into the ground. Sweat pours from the brow and often times the struggle seems too cumbersome a task. Then, the task is complete and the task is resurrected in the return to the chemo chair.
Sisyphus and I differ because he is dead and I am very much alive. My task may appear futile, but I have something that Sisyphus does not have: hope. His situation is infinite, decreed by the gods with no possibility for success, whereas though my torture may seem destined for failure, there has been no such prophecy.
I walk down the mountain towards my boulder smiling. Not because I am glad enjoy my plight, but rather because one day I will put the boulder in its place and descend the mountain with no plans to return.
So today, as I walk towards the boulder that awaits me in the chomo chair tomorrow, I smile, raise my glass, and propose a toast to life, to love, and to happiness (as I do every Wednesday night before chemotherapy). So, if you happen out on a random Wednesday night, and see me walk down the mountain and in the door of the bar, come and join me, we like company and good conversation, especially to clear the mind and become composed before we return to our burden. There is no cross we bear that is too heavy for our will to maintain, only a mind too irresolute to decide to do so.
"If you lose hope, somehow you lose the vitality that keeps life moving, you lose that courage to be, that quality that helps you go on in spite of it all. And so today I still have a dream." - Martin Luther King, Jr.

Tuesday, January 20, 2009

The Art of War...

We arrive at 160 East 53rd Street in New York. We smile and say hello to the kind workers at the information desk. Elevator ride to the fourth floor. Say hello and check in at the desk. Fill out forms for perscriptions if needed. Then:
Take a seat and wait.
"Samuel, Andrew!"
Name is called and it's time to give some blood. Blood pressure, temperature, and pulse rate.

"Do you have a mediport?"
"Yes."
"Which arm has the best veins?"
"Most like to use the left."
The veins in my right arm silently weep as they slink behind skin and muscle. The phlebologist investigates the veins while she puts a tourniquet around my left bicep. She lines up her weapons: alcohol preperation wipe, gauze, bandage, needle equipped with a catheter, four viles to be filled with type A+ blood. The technician steadily pierces the skin on the inside of the elbow just to the right of the scar tissue that has built up over the last two and a half years. A slight wiggle and the blood pours forth, methodically filling up each vile in succession. She pulls out the needle (it always hurts more coming out for some reason) places the gauze over the small poke and bandages that bad boy up. Step on the scale. I can't read kilograms... And I'm done.

Take a seat and wait...
And wait...
The doctor's assistant walks right up to me to take me into the back to see the doctor. Her name is Jane. Sometimes it's Jessica. They know me well enough to not have to call out my name. Now I'm in the room sitting on the protective medical paper over the patient chair. Now it's time to:
Take a seat and wait...
And wait...
And wait...
Wait...
Wait.

Knocking at the door can either mean the doctor has arrived, or the attending doctor has arrived. It's the doctor. We exchange pleasantries and the doctor takes a nonchalant position leaning agaisnt the counter. I like my doctor a great deal. Not only is he extremely knowledgeable, but he is able to read his patients well. He knows that he can say things to me shooting straight from the hip and I like that. Good news or bad, I need to hear it straight and to the point. Nice little talk, maybe a little poking and prodding and examining.
Deep Breath...
And another...
And again...
And again...
And one more time.
And it's back out to the waiting room.
To wait...
And wait...
Wait...
Wait...
Waaaiiiiiiiiiiit.
"Samuel, Andrew!"

Called again and this time for the knock out stuff. Sit in the chair. "Would you like a blanket?"
I bring my own. It's not particularly cold at first, but with all the intravenous fluids going in, it cools down the blood. Nurse comes in and asks the questions. Same questions everytime. Now it's time for another needle stick.
The 'Huber' needle is a thicker gauged needle that is curved down slightly. It is pushed into the mediport that is embedded in my upper right chest. This stick is far more painful than the arm stick. The curved needle slices through the thick, protective skin of the chest and falls into it's place within the mediport. Usually. Sometimes I'm lucky enough to have the nurse just miss the void that exists within the mediport. Sometimes they miss altogether and other times they hit the surrounding lining,either way the medicine cannot get into the blood stream. When they miss, though, they don't take the needle out. They only pull it out a little and try and reposition it while the needle is still inside of you. This is not fun. Other times you are lucky enough to be pricked more than once by the curved needle.

Needle is in the skin now. A little saline for a while to hydrate the body. Then the anti-nausea intravenous medicine.
Sit back, relax, and enjoy the next two hours. It's chemo time! I'm oddly composed as I watch the fluid in the bag race towards the tip of the needle lodged in my chest. I've always felt a relative calm in the chemo chair. A relaxed acceptance that the moment of calamity is upon me and it cannot be outrun. So slowly it comes and yet so consistently. I feel it the first time my heartbeat circulates the chemical-containing blood through my heart. It flutters in the beginning. The anti-nausea kicks in at this point. It's Benadryl. I started to figure it out. They drug you so you can't feel the initial effects of the treatment until later. My mind is stubborn, though. I stay awake as long as possible. The darkness takes over slowly. The clouds roll over the horizon. My mind grows tired, my eyes glazed, my speech erratic.
Fading...
Fading...
Faded...
Out.
The outside sleeps, but the inside fires off nuerological impulses as constant as ever. I can hear bits of conversations happening outside of me, and the war for dominance wages within me. It's the Battle of Bull Run on the inside and the outside peacefully sleeps with barely a rustle of the body. The Yankee troops of the normal cell tissue stages a battle. Massively out numbered and predicted to lose a quick war to the superior Confederacy. The Rebels of the dissenting cancer cells are highly skilled and highly trained soldiers prepared for swift victory over the Yankees. The Yanks win a surprising victory to start off. But much blood is spilled before the war ends. This, however, is the the microcosmic civil war. One body battling against itself. A single union divided by unavoidable issues. The dream wages on in my mind.
It is a lucid dream and I think I dream while I am awake.
It is a dream that does not end when I open my eyes.
It is a dream that does not end on the drive home.
It is a dream that does not end the next day.
It is a dream that has not ended.
My civil war rages and when my Yankee army is depleted and wounded and the superior killing machines of the Rebel South close in, I will recall Abraham Lincoln's words:
"The probability that we may fail in the struggle ought not to deter us from the support of a cause we believe to be just."

Let's have a party at Appomatox Court House when this war ends. Who's bringing chips?

Monday, January 19, 2009

Paradise Found...

...in those sometimes green, sometimes brown, always beautiful eyes.
...with hearing my brother's silent agreement.
...behind my parent's attempts to hide their smiles.
...watching the way my sister is "all growns up" and so much better than either my brother or myself.
...during late night movies.
...kicking back for "Couched-Out" Sundays.
...during Friday and Saturday nights out and about on the End of town that always goes West.
...on hot summer days and humid summer nights and dogs that won't stop barking.
...with all night bonfires.
...grilling steaks for 30 while sipping on a cold one (or more).
...playing marathon volleyball matches.
...seeing my sister-in-law in a pretty dress.
...in Rock Band.
...knocking knees on 'Our' back steps.
...finding the 'Mud Bandit' of 2008.
...seeing old friends every once in a while at the Inkwell
...winning state-championships.
...drinking 10 a.m. cocktails in a country that has English as a second language.
...remembering: cat. apple. table.
...performing full-recoveries.
...on trips to the flight deck on Sunday mornings.
...thinking about awkward questions at the first family dinner.
...inside of two cases of 'stones, 1-on-1 beer pong, and a little hard to get.
...looking unpleasantly at dimples on the butt
...listening to advanced battleship during Desperate Housewives.
...enjoying Super Bowl XLII.

These are a few of my favorite things...

Friday, January 16, 2009

Creative Writing...

I remember rubbing my hand against the protective paper over the medical examination chair. the doctor was talking, but I was barely listening to him. The sound my hand made against the paper was the sound of waves crashing on the shore in Monmouth Beach on a mid-summer day.

I envisioned myself on that beach. She was in a chair to my right putting on some tanning lotion. I smiled and said I was going to take a dip in the water. Of course I asked her if she wanted to come, but she said no as she usually does. "The waves could gobble me up and swallow me. I'm just a little itty-bitty!"

"So, in other words, there is no way that I can confidently tell you how long I believe you have left to live, because cancer is such an individual disease. Some people have the smallest of lesions and don't last more than a few months and others have very bad cases and end up having a nice quality of living for a long time."

I didn't like how often he referred to the term quality of living. As if feeling sick every day, being bald, throwing up, being too tired to do anything was any type of living besides a shitty kind. Was it supposed to make me feel better that every so often he treated someone that had a pretty bad case who made it more than a few years. I didn't want to delay the disease. I wanted to get rid of it. I can hear him talking over the thoughts in my head. What was that? He has treated someone as young as 19 years old who had a stage IIIa disease...

"How long did his 'quality of life' last, Doc? Is he still with us?"

"I'm not really able to discuss other patients with you."

I didn't think so. I don't want to be in this room right now. The worst thing is that I have about 10 people out there in the waiting room waiting for me to go out there and say, "You know what? They made a mistake. I'm just perfectly fine," but I'm not perfectly fine. I'm perfectly fucked. I can't say that I'm particularly angry at anyone. I can't really say that I don't deserve this. I think it's just pretty much something that happens and this time it has happened to me. What is it going to be like for my parents to have to bury their son? That's not the way it's supposed to go.

How can I look into the eyes of the lady I love and tell her that everything is going to be okay when the other doctors aren't sure if I'm going to make it out of August?

I just have to keep everything together. Don't let them worry about you more than they already are worrying. If the worst happens at least you won't be around to have to watch your loved ones cry. If anythign else happens just tell yourself it could always be worse...

I don't want to die right now. I want to marry her. I want to have kids. I want to see my brother's kids. I want to be a best man. I want to be an uncle. I want to graduate college. I want to see the Grand Canyon. I want to see Niagra Falls. I want to own my own business. I want to be a grandfather someday. I want, I want, I want...

Did he just say that I should consider freezing my sperm? Well, thanks, Doc. That sure as shit made it awkward with my parents in the room. I'm not going to be able to have kids! There might be some people that think that's better off though. I guess I will just have to wait and...

"Yeah... Thanks, Doc... I know... Okay, two weeks, can't wait...Bye."

"Are you okay, Son?"

"Let's just go. I want to get out of here."

I want to have a cigarette. I want a stiff drink. I want to get wasted and stop having these terrible thoughts in my head. I don't want to keep imagining lying in a bed with everyone around me crying and concerned. I just want to go to that party tonight where nobody knows and I don't have to keep dealing with it...

"No, honey, everything was fine... The doctor is very optimistic... We aren't sure yet. I have to coem back in two weeks...Yes, I still want to go to Justin's... No, I promise, I won't drink or have a cigarette... You're right. I am lying. Maybe just a few cigarettes."

That's it. I never want to see that look in her eyes again. You tell her it's going to be okay and then make sure that it's going to be okay. Make a promise to yourself right here. Be the exception to the rule. Be the one who writes the statistics, rather than the one that follows them. Don't lose the faith. What did Mickey used to tell Rocky in the movies? 'You're a machine. A machine. Put your head down. Keep moving forward. Run right through 'em!' That's what I'm going to do. Accept everything that happens, but never fold your hand. Break them and keep breaking them as long as they let you. The world doesn't owe you anything. It has no reason to take it easy on you. But you don't owe the world anything either. Who says you have to take it easy and just lay aside while the black hole sucks you in and tears you apart? You have two options: live or die. You can attack life and do it the right way for whatever time you have left, or you can lay back and let life happen to you. Attack. It's what you have always done. Go for the throat. Keep moving forward. Run right through it. Run right over it. It's not over until every bone in your body is broken and every muscle inside is torn apart. Let the world come after you and try and take you - death isn't and option, it's an inevitability - but you give the world the toughest fight it's ever had. Don't give up.

The birds are twittering outside of the window. My leg is super hot for some reason. I just had a weird dream. Death was attacking me. I kept jumping out of the way of the sickle. I pushed him off the cliff. But he told me that more would come after me. And keep coming until I'm the one who falls... I'm staring at my wall. I can hear birds and feel warmth and I can see my wall. It's been over a month. 'What now, CANCER!' Fuck it. I'm done. I'm done worrying. I'm done with all the darkness. I'm done with the waiting. I'm done with it all. I just want to go on. It's going to be tough. Forever. It will never be the same again. But I'm going to spend my life doing my best to make everything exactly the same.

I'll leave you with these two thoughts about pushing yourself to the extreme and giving all your body can muster up:

"Somebody may beat me, but they are going to have to bleed to do it." - Steve Prefontaine
"To give anything less than your best is to sacrifice the Gift." - Steve Prefontaine

I don't know what my "Gift" is... but I know that I'm ready to bleed.

Thursday, January 15, 2009

I got white dog crap in my belly, then you lay this shit on me...

It all comes down to treatments...


Immediately, almost instinctively, we imagine nausea, vomiting, hair loss, weight loss, fatigue. Images flash before our eyes like the camera toys for kids where you slide in a film strip and click through to see the images. There's the Eiffel Tower. There's the Sphinx. The Pyramids of Egypt. Machu Picchu. Statue of Liberty. The Great Wall of China. Except these pictures are altogether more sadistic: We watch ourselves wasting away in a hospital bed. Running to the bathroom to throw up. Looking down into our hands to see our hair falling out. Darkness and death.

What does it feel like?

It's about as bad as you can conjure up in your head, and then make it a lot worse.


My frist treatment was filled more with anxiety than vomitus. I was worked up and scared and nervous. What would it feel like? Would it hurt? How long would it take?

Will I still be myself afterwards?


Outcome: uneventful. I got nauseous and was a little tired in the days following the treatment. But I did not think it was that bad. So, I went in to the second treatment thinking, "Maybe I'm just lucky. Maybe the chemotherapy just doesn't affect me in the way it does other people." Stranger things have happened.

I was wrong. The second treatment hit me like a baseball bat to the back of the head. I was OUT! I was in bed for a couple of days straight. I couldn't eat. I couldn't drink. My tongue felt like a piece of sand paper. I was dizzy. I couldn't open my eyes. I felt like I had fallen away from the world, just my bed and I.


The doctor told me I HAD to eat during treatments, and I explained to him that eating would be lovely and I enjoyed doing it, but not when swallowing would be concurrent with vomiting. My solid food diet was suspended and I was relegated to drinking Gatorade, Boost, and Ensure. I had all the flavors I wanted... I still couldn't drink them. I drank them so often that the smell of those drinks nearly made me vomit.


Before I was diagnosed and began treatment I weighed a stout 175 pounds, which was normal for me. In one month's time, I weighed only 145 some-odd pounds. I lost over 30 pounds and looked like a walking corpse. I had not weighed that light since 7th or 8th grade. I grew out a beard to hide how frail and gaunt I had become. For my two year anniversary, I had to wear a jacket from 7th grade, because I looked like a ten-year old in his father's suit.


Then the hair started to fall out. Now, I have always had a ridiculously, unnecessary abundance of hair. The range basically went from the top of my head to the tips of my toes without a break. As such, though my hair fell out, I still had remnants, though they tended to be sporadic and non-uniform. My eyes brows vanished (though the existed in some purgatorial state that made it seem as if I was waxing my eyebrows into a shape indicative of the St. Louis Arch). Similarly, my eyelashes disintegrated. Tears poured forth from my eyes in the slightest of winds. Even my nose hairs disappeared and nose-bleeds were a plenty. You don't realize the beauty of design in the human body until those things are robbed from you. My chest hair thinned (I spent the majority of my life until that point wishing that it woudl go away, and I found myself missing each strand of organic velcro that had once garnished my body). I found that it was extremely surprising how warm all that hari had kept me when I had it, and how ridiculously cold I was now that I no longer had it.


A lot of people have tried to figure out how chemotherapy "feels." I cannot seem to really put it into words that give it justification. All I can say is that the physical ailments and the torture (and it is indeed torture) that your body faces is less than nothing compared to the mental agony that you have to endure. I will never be able to fully express how you feel physically during treatments; it's incomparable to anything else I have ever experienced. And I hope that you will never know what I mean. I can only try and put you in some type of mind frame to try and see if you can begin to get the mental strain you undergo.


The only way to save your life is to engage in an act that while possibly giving you a chance to become better, simultaneously threatens to kill you. And you must bring yourself to the hospital willingly to sit down in that chair and have them hit you with the hard stuff, knowing beforehand how crappy you are going to feel and knowing that the side effects only get worse the further along you go.

But there is an African saying:
"Rain beats a leopard's skin, but it does not wash out the spots."
For more about the theory of 50/50 see the writings of Chuck Klosterman

Tuesday, January 13, 2009

Remember these words: Cat. Apple. Table.

Forget about statistics.

To me, statistics feels like a branch of mathematics that is a product of our needs, as a society, to make sense of an otherwise imbecilic world. Statistics is defined as "the branch of mathematics that deals with the collection, organization, analysis, and interpretation of numerical data. Statistics is especially useful in drawing general conclusions about a set of data from a sample of the data" (The American Heritage Science Dictionary). In other places it is described a branch of mathematics that uses probability theory.

Statistics draws general conclusions about a set of data from a sample of the data using probability theory. But we let statistics govern our lives. What we choose to do and not to do. Another way that we use statistics is as a reader of the future. That is, we use statistics to determine whether or not something will likely happen at some point in the future. This to me seems inconsistent. How can we use samples of data in the past or present in order to determine something that has not yet happened? People take such a big issue with the idea of fate, destiny, and the Judeo-Christian ideology that supports Providence, and yet they adhere to an idea that purports to be able to use the past to make an educated assumption about the future.

To me, statistics is only relevant in a world of potentiality - a world of possibilities and probabilities. That is the world that waits for us in the future. Us looking forward into the face of the future is like looking into a dark cave. The possibilities of the shape of the cave is infinite. It is not until we walk into the cave and light is shined into the cave that we can determine exactly how the cave is shaped. Similarly, the future is a shapeless terrain with infinite shapes that it can take determined by the decisions we make today; and it is not until we enter the future, and it becomes present, where the light shines onto that time that we can determine exactly the way things have turned out. But we do not live in a world of probabilities; rather, we live in a world of actualities. Flipping a coin, you have a 50% chance that it lands heads and a 50% chance that it lands tails. But I can flip it 100 times and get heads 75 times and tails only 25. So much for statistics.

A single die (one half of a pair of dice) has six sides, each numbered 1-6. If you plan on rolling the die at some point in the future and you hope that the number "5" turns up, statistics and probability says that there is a 1 in 6 chance that "5" will show up (16.67%). Great! I'm excited. So I roll the die and I get a "3". When there is no die and there is no rolling and we are only talking about what could happen if I rolled a die and wanted to see a "5" that is when we are in the world of probabilities where my 16.67% chance has some substance. but when I have the die and am prepared to roll it and have selected the number I wish to be displayed, 1 in 6 is gone, and I'm left with a very simple dichotomous future: either the die will turn up "5" or it will not turn up "5." My chances are 50/50.

Either something does happen or else it does not happen. There is no reason to consider the probability of something happening in reality as such, because that consideration is only significant if we remain in a vacuum. There is a fifty percent chance of anything happening to you, around you, inside of you, beside you, etc. The probability of being killed in an automobile accident are 5,000 to 1 (http://www.fearlessflight.com/), the possibility of fatally slipping in a bath or shower is 2,232 to 1, and your odds of getting hemorrhoids are 25 to 1 (www.funny2.com/odds). These statistics are data-based approximations. And yet, it serves me no purpose to concentrate on these bits of information, because approximations can only be applied to a large group or else, when applied to significantly smaller set (as in an individual or all the people known by an individual), the sample set is too small. When the information is in fact attributed to a large group, the best the statistics can do is make some generalized impersonal statement about the group at large without expressing anything specific regarding the individuals that make up the group.

Statistics in no way can be used as an indicator of the likelihood of my personal chances of experiencing any of the conclusions drawn by said statistics. Once I experience one or another of the infinite experiences that one may or may not have, it becomes irrelevant what the prior probability of such an event to have occurred was, because it has ACTUALLY occurred. Whether the possibility before the event took place was 5 to 1 or 5,000,000 to 1, the event has actually happened and I am experiencing it. Whatever the relative statistics may have been for me to have developed the specific type of cancer that I have, my chances to ACTUALLY have developed that cancer was and always would have been 50/50. Either I was going to develop the cancer or I was not going to develop the cancer.

Paradoxically, the only way to know whether or not something will happen is for it to happen, at which point it becomes inconsequential what the likelihood of the thing happening was previously. On the other hand, the only way to know that something will NOT happen will be through retrospective observation by those who care about us after we die. That is, the possibility that you will develop cancer in your life will be present for the duration of your life, and it will only cease to be a possibility once you have moved on to the hereafter. Statistics comfort us by making us believe that we are statistically exempt from having certain things happen to us. Well, we're not...

And just in case you are thinking about locking yourself in a bubble and never leaving your house because you believe this will tilt the odds in your favor just remember what Julius Caesar said to his wife when she warned him that he should not leave his house because there was a chance that the citizens of Rome would try and kill him:
Cowards die many times before their deaths;
The valiant never taste death but once.
Of all the wonders that I yet have heard,
It seems to me most strange that men should fear
Seeing that death, a necessary end,
Will come when it will come (Shakespeare, Julius Caesar, Act II, Scene II, 33-38).

Can you remember the three words I told you to remember without looking at the title?

If not, then your brain cancer surgery did not go well...

Monday, January 12, 2009

If Blue Sca-doo...

In 2008, it was estimated that the United States Population was approximately 303,824,640 people. In 2008 it is estimated that 1,437,180 people were newly diagnosed with cancer and 565,650 people dies from cancer. That is a total of 2,002,830 people, roughly 0.659%.

The global population is estimated at 6,706,993,152 people. It is reported that 12 million people were diagnosed with new cancer cases and 7.6 million poeple died of cancer related deaths. That is a total of 19.6 million people across the globe, roughly 0.292%.

In 2006 the U.S. population was about 299.1 million people. 21,000 Americans were projected to be diagnosed with stomach cancer. That's about 0.007021% of the population. The average age at the time of a diagnosis of stomach cancer is 71. Approximately two-thirds of ALL people with stomach cancer are older than 65. About 5% of patients are younger than 35 years old and only 1% of stomach cancer patients are younger than 30.

1% of 21,000 people: 210. I was one of an estimated 210 people that in 2006 would be under 30 years old and diagnosed with stomach cancer. 210 out of 299.1 million is .00007021%. 1,424,286 to 1. Rare company indeed. There are better chances for the following to occur: dating a supermodel (88,000 to 1), the Detroit Lions winning Super Bowl XLIII (10,000 to 1 - assessed at the beginning of the season), winning an Olympic medal (662,000 to 1), and drowning in a bathtub (685,000 to 1).

And the staging process, how does that work? Stage I, II, etc. what does it all mean? Well each cancer stages differently. For stomach cancer there are many stages: Ia, Ib, II, IIIa, IIIb, VI. Staging is determined using the TMN system, where T explains the the extent of the cancer's penetration through the stomach wall (Tis-T4), N explains the number of lymph nodes that the cancer has spread to (N0-N3), and M is the presence of metastases to distant organs (spreading to other organs [M0-M1]). At my diagnosis I was considered a T4N1M1. A multi-problematic stage IV.

Oncologists and medical personnel in the cancer field determine success based on a statistical system known as the 5-Year Survival Rate. That is, if you are able to maintain a good quality of life for at least five years after the date of your diagnosis, you are considered a successful patient. The 5-year survival rates for the respective stages of stomach cancer are as follows:

Stage Ia/Ib - 88%
Stage II - 65%
Stage IIIa/IIIb -35%
Stage IV - less than 5%

My treatments started in August of 2006. It would be Monday and Wednesday every other week. My doctor and my family thought I should take a year off from college. I figured that I would live as close to the same life as I possibly could. So I attended class. I stacked my classes on Tuesdays and Thursdays. Treatment weeks I would have treatment on Monday, classes on Tuesday, treatment on Wednesday, and classes on Thursday. I did take some extra days off. I graduated on time in May of 2007. What a headache!

Actually, the headache came in March of 2008. After 11 months straight of chemotherapy, I was given the summer off of treatment to recover. Treatment started again in October and continued through March of 2008. In the beginning of the month I started getting some headaches. Mild, though. By the end of the month the headaches culminated in one intense migraine. It got so bad that on Friday March 28th I was unable to function properly and went to the hospital for evaluation. I was told I had compound migraines caused by the new chemotherapy drugs I was on.

So imagine my surprise when subsequent CT-scans and MRIs revealed a malignant tumor in my right frontal lobe about 3.5cm squared, or roughly the size of a golf ball. Since we are talking about percentages: less than 5% of ALL stomach cancer patients will EVER have metastasis to the brain. Better and better, right. I'm already in the 1% of all stomach cancer patients, on top of that I have Stage IV with a 5% 5-year survival rate, and now I get another medical improbability on the plate. Immediate surgery was necessary, and on April 1st (April Fool's Day - how fitting) I had the tumor excised.

When I had recovered, I stopped my chemotherapy treatments for a while and began my radiation therapy, which took place over 2 weeks. Then I immediately restarted chemotherapy returning to a more physically demanding regimen. In the recovery time after the surgery, however, the cancer spread to my peritoneum and to the outside of the bladdar.

Millions of years of evolution and we still don't know a damn thing about anything (at least not officially). There are things we can "know" within ourselves. I want to share something that somebody said once. And I hope one of my friends recognizes this and remembers what it meant, and I hope you read it and realize that it not only applies to me or cancer patients or any particular person, place, or thing; but rather, it applies to whatever we choose to apply it towards:
"Now things in your life have changed ALOT, but you can get through this and anything else. You are not a victim. You are not a statistic. You are an anomaly. A rare, and therefore, special culmination of particular symptoms that have converged on one place at one time. And because you are an anomaly, you are capable of acheiving anything." - Anonymous

...we can, too.

And to ask the question is to know the answer...

"For no sooner do we begin to live in this dying body, than we begin to move ceaselessly towards death... so that our whole life is nothing but a race towards death, in which no one is allowed to stand still for a little space, or to go somewhat more slowly..."- Saint Augustine "City of God"

What an uninspired view of life. Life is a race towards death where no one can stop and smell the roses without, essentially, wasting the precious few moments that he has to live. Augustine's solution: spend your entire life praying and reflecting on God in the hopes that, after death, we will be rewarded with eternal life.

I will not impart any particular religious views because they all appear to be different slices of the same pie, with "exclusive" stories of their specific religions oddly enough seem to overlap with every other religion's "exclusive" stories. Similarities notwithstanding, let us presume there is a Creator, and it is within His creation that we exist. Fine. And it's clear that every moment we live is actually another moment closer to our death. Fine. But does that mean that we can only live after we die if we are lucky enough to be granted the grace of some omniscient Being?

It seems to me that the whole problem that people have with dying is that they do not know what death will be like and that they do not know what comes after death. If only a few of us are saved, then we fear damnation and so live according to certain rules. If we are all saved, then we fear damnation less and live according to a different set of rules. If there is no life after death, then we tend to grasp to every moment of our lives, scratching and clawing to pull ourselves in the opposite direction of the conveyor belt that draws us nearer to our final packaging.

Fear, then, is our major motivator. Fear is the reason we believe in religions and why we cower at the sight of death. Fear is why our emotions pour forward when we hear of someone who is at the end of their life. And we fear it because we know nothing about it:
But that the dread of something after death,
The undiscovered country from whose bourn
No traveller returns, puzzles the will,
And makes us rather bear those ills we have
Than fly to others that we know not of?
Thus conscience does make cowards of us all - Shakespeare "Hamlet" (Thanks Mr. Maier)
This is the state of our existence. Fear drives us. But it is not death that we are afraid of, but rather the thought of death. When we imagine our own deaths, we imagine ourselves present in that moment. We imagine watching our loved ones crying because we are no longer with them. We wonder about who will show up to our wakes and our funerals. Were we loved? Did people really care about me? What will they say when I am gone? We worry about whether our wives or husbands will re-marry. Will our kids remember us? Will they think about me everyday? How much will I miss out on because I will no longer be alive?

But how much are you missing out on every day while you are still alive and have a chance to experience life?

Why worry about what you cannot know or reasonbly imagine? Change the course of the history of your life by acting today in a way that will make you smile when you are gone and looking back on the world. The reflections of God or the Creator or the gods are accessible all around us - in the glimpse of a lover's eye, in the giggle of a baby, in the beauty of a snow covered mountain range, in the serenity of the wind bustling through the trees, in the warmth of the sunshine on your cheeks, in the splendid taste of an ice cold beer in a frothy mug, in the tenderness of a mother's touch, in the adulatation of a "perfect game", in the pleasure of friendly company, in the raucousness of explosive laughter during good conversation, in the awe of a windless summertime day on the beaches of the Jersey Shore. These are my prayers. I try and see them in every moment that passes. Circumstance affords some of us the luxury of taking our time to discover that which is important in life. Such a luxury was not extended to me, but it was replaced with a much better gift: the immediate realization of how lucky we actually are. I wish you all could truly know how amazing a meal actually tastes, or how soothing it is to be with someone you love, or how good it feels to really laugh so hard it makes you cry...

Life is not a race towards death. It's not a race at all. It's a careful contemplation of who we are and what is important. We cannot help but ask "What is the meaning of life?" constantly demanding an answer to an apparently impossible question to answer. Is it impossible? I think in this case the question IS the answer. To ask "what is the meaning of life?" and expect an answer is like asking the sun not to rise and it conceding. To ask "what is the meaning of life?" and to pursue the answer in your life IS to answer the question. Simply put: the question - what is the meaning of life?; the answer - living.

"Certainly there is no one who is not nearer [death] this year than last year... For whatever time we live is deducted from our whole term of life, and that which remains is daily becoming less and less...It is one thing to make a longer journey, and another to walk more slowly. He, therefore, who spends longer time on his way to death does not proceed at a more leisurely pace, but goes over more ground. Further, if every man begins to die... as soon as death has begun to show itself in him... then he begins to die so soon as he begins to live." - Saint Augustine "City of God"

...Better get started living...

Friday, January 9, 2009

One a lighter note...

I have solved the mystery of wehter a tomato is a fruit or a vegetable...

I stopped caring, and all my problems went away.

Seriously, if foods were people, people would give shit about which army the tomato was fighting on about as much as you care about knowing the color of your mom's under garments

Tyler Derdun Never Lies...

The Rules of dying:

1st Rule: You do not talk about dying.
2nd Rule: You DO NOT talk about dying.
3rd Rule: If you give up, tap out, it's all over.
4th Rule: It's only you in the fight.
5th Rule: You only have one life.
6th Rule: No guts, no glory.
7th Rule: Life goes on as long as it has to.
8th Rule: If this is your first time, you're probably shitting a brick.

How much can you know about yourself if you've never been in a fight?

Well, not a lot.

Your entire life is a fight. From sperm to the deathbed.

Get this: When I was 21 yes I was told I would die. When you think about it, it's not really news. I knew that one day I was going to die eventually. I knew that no one lived forever. So why was it such a big deal? Because like everyone else, you know death is coming, but it's always thought of as something that will come, but it won't come now. It's thought of like Xeno's paradox of locomotion. In order for death to come, first it must travel half way to you, and once it travels half way it needs to travel half of the remaining distance, then half of that remaining distance, and so on, and so on, and so on. Thus, death can never arrive because there are an infinite number a half way points between you and death.

Ha. And this absurd logic is something we actually convince ourselves is true. Philosophy categorizes this type of argument of "Reductio ad Absurdum" (i think), which loosely means, if you follow out this argument to it's end, the result one would get produces an absurd outcome, which negates the argument altogether. But we always imagine we are invincible and act surprised when we are confronted with death.


But people do die. So Xeno's paradox must be absurd, because according to him no one can die, but reality proves otherwise.


We all accept the fact that cancer exists. No one refutes that point. What becomes silly is that we believe that cancer will happen, it just will not happen to ourselves. Our lives are ego-centric by necessity. We are only able to look at our lives, and the world proper, through our individualized perspective. So we are the main characters in our stories. We cannot imagine the star of the movie dying at the beginning of the story. He's supposed to live a cool life, then meet adversity, then go through some serious ups and downs, then get the girl, AND THEN he can die. But only after everything is tied up in a nice neat packaging with a bow on top. That's why in "Top Gun" Goose dies in the middle of the movie, but Maverick (Tom Cruise - who could forget the volleyball scene? Seriously, though, who flexes while checking their watch for the time?) deals with his adversity, kills the bad guys and then gets the girl. Sure the charater Maverick dies evetually, but that stuff happens off the screen where no one can see it. Maverick doesn't die of cancer. He dies of old age.


And WE are the Tom Cruises of our life movies. And we never envision the main character dying in the first half of the movie. So we say things like "I know cancer happens, but it won't happen to me," because we are somehow too special to get cancer. It's okay to happen to other people, just not to us. Wouldn't it just be perfect if bad things happened to bad people, and nice things happened to nice people? It would be like us living in a Disney Movie where everyone lives happily ever after except for the bad people. We can all be Cinderella and the bad people can be the Step-mother.



But it's not a movie. For me it's real life. For YOU it's real life, whether you admit it or not. The point is not to constantly worry about death around every corner. It's only so that you can reflect on how you really want to live your life thinking that maybe tomorrow you don't get a chance to do what you always wanted to do. Or say good-bye to the people who deserve to hear it. My biggest fear is dying before I can make sure that everyone I love knows I love them. Here's how it is though: you can't choose the way you leave this life, but you can choose the way you live this life. Put it on a bumper sticker and sling that shit!


To put it another way, life is like a game of No Limit Texas Hold'Em Poker. You can win big taking risks and you could lose it all in one throw. there is no winning and losing, because to win today means to lose tomorrow and a loser tonight can be Chris Moneymaker in the morning. Sometimes you get Queens full of Aces and sometimes you get no pairs, no connectors, and your drawing dead before the flop. You cannot control which cards are dealt to you, but you can control how you play those cards. Check, raise, bluff, fold, bait, all-in, call... In life, like in poker: only focus on the things you can control, and let the chips (yes the pun was intended) fall where they may.


I can't speak for everyone, but if I'm going down... I'm going down breaking every knuckle in my fist punching against death. I'm going down on my terms.


I am not a Cancer Victim.

I am not a Cancer Patient.


I am a Boxer who always has a puncher's chance.

I am a soldier of life.


I am Jack's Smirking Revenge...

Wednesday, January 7, 2009

The First Post

Stage IV Gastric Adenocarcinoma. Metastes to esophagus, lungs, lymphatic system, peritoneum, bladder, and brain.

Fancy way of saying: your shit is fucked.

Well, it started off as a difficulty in eating. I was drinking heavily and working hard, so it seemed like a normal bodily reaction. It wound up being stage IV stomach cancer that spread to the esophagus, lungs, and lymphatic system.

I was told that I had 4 weeks to live. I was 21 years-old... I remember that day was sunny.

Well what could I do? We are very rarely able to appreciate the entirety of an event during the time we are experiencing it. This has given rise to the cliche that hindsight is 20/20. It is obviously easier to see the correct decision, or the extent of a situation, after you have experienced that event. After the event and/or decision has affected your life positively or negatively it is not too difficult to recognize it's impact at least on a very superficial level.

So I was sad, but no one knew that I had gone to a few other doctors alone who confirmed my diagnosis and actually were the ones who gave me the 4 week deadline. The oncologist I chose as my primary caretaker was reluctant to give me a time frame answer, especially with all of my love ones around. So the 2nd, 3rd, and 4th opinions spanned everywhere from 2-4 weeks.

Something happened on day 29. I felt liberated. I had beat the numbers. Calculations and probablilities weren't for shit. I woke up staring at my white wall. I remeber smiling, because I had been counting the days. It was at that moment that I realized that I was now playing with the house's money. I had many dark days reflecting on death and the things I would miss about life during the previous days. I accepted that I was going to die - soon, tomorrow, someday - and on day 29, the fact that I made it one day longer than expected allowed me to happily accept death whenever it came.

I've realized a lot of things since the "Reset" button of my life was pressed. Some of them you will not want to hear if you or someone you know has cancer or some other tragic disease or misfortune. The good things, though, you want to hear them, and for the first post I want to give you one really good thing to look forward to:

I was diagnosed Thursday July 6, 2006. I made it much longer than 29 days.

I can only tell you this blog will be sometimes sad, sometimes funny, always truthful.

I will talk to you soon